This Online Support Group Directory is designed for use by families, as well as health and human service professionals who work with children and adults affected by known or suspected genetic diseases, birth defects, and related conditions in Michigan. It contains information about support groups and organizations with a contact person or chapter in the state of Michigan. Some listings represent divisions of national organizations, whereas others are informal groups just getting started.  For a complete listing of national groups, visit the Genetic Alliance website .

You will also find contact information for Michigan’s state and local agencies that offer services to families, and a listing of national website resources.

Keep in mind that updates and revisions are added regularly. If you are the contact person for one of the groups listed in the directory and would like to update the information listed,  please visit your groups listing in the directory and click "Update Contact Information".

If you have a support group and would like to be added to the directory, please click here.
If any of the information listed is incorrect please contact us at 1-866-852-1247 or email us.

For more information related to genetic services in Michigan, visit the link Genetic Health Services. You can also call the toll free Genetics Information Line at 1-866-852-1247 or email genetics@michigan.gov.




Please note: Listing in this directory does not constitute an endorsement by the Michigan Department of Community Health or any other state/federal government agencies. Remember, before making any health care decisions based on information obtained from the Internet; always consult your own health provider.