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Birth Defects are a serious problem impacting the physical and emotional health
of many Michigan children and their families. They are the single leading cause
of death in children under one year of age. About one in 33 babies is born with
a serious birth defect, and approximately 8,000 Michigan babies each year are
found to have a condition affecting their health or development.
Prevention.
Some birth defects can be prevented. For example, spina bifida is a neural tube
defect caused by incomplete development of the spinal cord. Neural tube defects
can be prevented by taking enough folic acid before and during the first month
of pregnancy. For more information about ways to prevent certain birth
defects
click here to view the brochure Preventing Birth Defects. If you would
like to order this pamphlet
click here
.
Monitoring.
Since 1992 the
Michigan Birth Defects Registry (MBDR) as mandated by
state law (PA 236 of 1988, H.B. 4007), has been tracking the
number and types of birth defects that occur in the state. More
than 800 different kinds of birth defects are monitored. The confidential
registry relies on reports from hospitals and some genetic laboratories
within 30 days of a child's first diagnosis. To find summaries of birth
defects data, visit the link
www.mdch.state.mi.us/pha/osr/index.asp .
Follow-up.
Assuring that families receive information in a timely manner while
protecting the privacy of birth defects data is a major priority. A free
pamphlet describing statewide resources and
services is available to families, hospitals, and anyone working with infants
or toddlers who have special health care needs. The Genetic
Support Group Directory provides links to additional resources statewide.
To
view the brochure Resources for Families of
Infants and Toddlers with Special Health Needs, click here
and to
order this pamphlet click here.
Prevention web sites of interest. Listed below are national web sites
that you can visit for more information about folic acid and other prevention
materials.
Professionals.
For more information about folic acid for your patients, visit the
FolicAcid.net website to view the guide for health professionals, a
collection of resources on education, professional services, research, and much
more.
Parents. Parents who need additional help
finding resources or services may contact the state’s
Birth Defects Follow-up Coordinator by email
at BDRfollowup@michigan.gov or
call toll free 1-866-852-1247.
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